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Parenting a child with phenylketonuria or galactosemia: implications for health-related quality of life
Parents of children with chronic disorders have an impaired health-related quality of life (HRQoL) compared to parents of healthy children. Remarkably, parents of children with a metabolic disorder reported an even lower HRQoL than parents of children with other chronic disorders. Possibly, the unce...
| Autores principales: | , , , , , , , |
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| Formato: | Texto |
| Lenguaje: | English |
| Publicado: |
Springer Netherlands
2011
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3063540/ https://www.ncbi.nlm.nih.gov/pubmed/21290186 http://dx.doi.org/10.1007/s10545-010-9267-3 |