Parents' perception of self-advocacy of children with myositis: an anonymous online survey

BACKGROUND: Children with complex medical issues experience barriers to the transition of care from pediatric to adult providers. We sought to identify these barriers by elucidating the experiences of patients with idiopathic inflammatory muscle disorders. METHODS: We collected anonymous survey data...

Descripción completa

Detalles Bibliográficos
Autores principales: Katz, James D, Mamyrova, Gulnara, Agarwal, Shilpi, Jones, Olcay Y, Bollar, Harriet, Huber, Adam M, Rider, Lisa G, White, Patience H
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2011
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3118375/
https://www.ncbi.nlm.nih.gov/pubmed/21649897
http://dx.doi.org/10.1186/1546-0096-9-10

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3118375/
https://www.ncbi.nlm.nih.gov/pubmed/21649897
http://dx.doi.org/10.1186/1546-0096-9-10

Ejemplares similares