Secondary uses and the governance of de-identified data: Lessons from the human genome diversity panel

BACKGROUND: Recent changes to regulatory guidance in the US and Europe have complicated oversight of secondary research by rendering most uses of de-identified data exempt from human subjects oversight. To identify the implications of such guidelines for harms to participants and communities, this p...

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Detalles Bibliográficos
Autores principales: Fullerton, Stephanie M, Lee, Sandra S-J
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2011
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3195203/
https://www.ncbi.nlm.nih.gov/pubmed/21943371
http://dx.doi.org/10.1186/1472-6939-12-16

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3195203/
https://www.ncbi.nlm.nih.gov/pubmed/21943371
http://dx.doi.org/10.1186/1472-6939-12-16

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