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Secondary uses and the governance of de-identified data: Lessons from the human genome diversity panel
BACKGROUND: Recent changes to regulatory guidance in the US and Europe have complicated oversight of secondary research by rendering most uses of de-identified data exempt from human subjects oversight. To identify the implications of such guidelines for harms to participants and communities, this p...
| Autores principales: | , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
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BioMed Central
2011
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| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3195203/ https://www.ncbi.nlm.nih.gov/pubmed/21943371 http://dx.doi.org/10.1186/1472-6939-12-16 |