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Privacy revisited? Old ideals, new realities, and their impact on biobank regimes
Biobanks, collecting human specimen, medical records, and lifestyle-related data, face the challenge of having contradictory missions: on the one hand serving the collective welfare through easy access for medical research, on the other hand adhering to restrictive privacy expectations of people in...
Autores principales: | , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer Berlin Heidelberg
2011
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3218287/ https://www.ncbi.nlm.nih.gov/pubmed/22162962 http://dx.doi.org/10.1007/s10202-011-0094-x |