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Willingness to share personal health record data for care improvement and public health: a survey of experienced personal health record users

BACKGROUND: Data stored in personally controlled health records (PCHRs) may hold value for clinicians and public health entities, if patients and their families will share them. We sought to characterize consumer willingness and unwillingness (reticence) to share PCHR data across health topics, and...

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Detalles Bibliográficos
Autores principales: Weitzman, Elissa R, Kelemen, Skyler, Kaci, Liljana, Mandl, Kenneth D
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2012
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3403895/
https://www.ncbi.nlm.nih.gov/pubmed/22616619
http://dx.doi.org/10.1186/1472-6947-12-39