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Health-related quality of life in Huntington’s disease patients: a comparison of proxy assessment and patient self-rating using the disease-specific Huntington’s disease health-related quality of life questionnaire (HDQoL)

Huntington’s disease (HD) is a fatal, neurodegenerative disease for which there is no known cure. Proxy evaluation is relevant for HD as its manifestation might limit the ability of persons to report their health-related quality of life (HrQoL). This study explored patient–proxy ratings of HrQoL of...

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Detalles Bibliográficos
Autores principales: Hocaoglu, Mevhibe B., Gaffan, E. A., Ho, Aileen K.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer-Verlag 2012
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3432781/
https://www.ncbi.nlm.nih.gov/pubmed/22392579
http://dx.doi.org/10.1007/s00415-011-6405-2