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The feasibility of collecting information from people with Multiple Sclerosis for the UK MS Register via a web portal: characterising a cohort of people with MS

BACKGROUND: A UK Register of people with Multiple Sclerosis has been developed to address the need for an increased knowledge-base about MS. The Register is being populated via: a web-based portal; NHS neurology clinical systems; and administrative data sources. The data are de-identified and linked...

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Detalles Bibliográficos
Autores principales: Ford, David V, Jones, Kerina H, Middleton, Rod M, Lockhart-Jones, Hazel, Maramba, Inocencio DC, Noble, Gareth J, Osborne, Lisa A, Lyons, Ronan A
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2012
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3444329/
https://www.ncbi.nlm.nih.gov/pubmed/22809360
http://dx.doi.org/10.1186/1472-6947-12-73