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The rare disease challenge and how to promote a productive rare disease community: Case study of Birt-Hogg-Dubé Symposia
Resources for rare diseases are lacking. Patients do not have the information and support that they need, and researchers struggle to make progress due to a shortage of skills and collaborations within the field. One way to overcome these hurdles is to host annual Symposia, focused on a specific rar...
| Autores principales: | , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
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BioMed Central
2012
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| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3458974/ https://www.ncbi.nlm.nih.gov/pubmed/22950632 http://dx.doi.org/10.1186/1750-1172-7-63 |