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Key outcomes from stakeholder workshops at a symposium to inform the development of an Australian national plan for rare diseases
BACKGROUND: Calls have been made for governments to adopt a cohesive approach to rare diseases through the development of national plans. At present, Australia does not have a national plan for rare diseases. To progress such a plan an inaugural Australian Rare Diseases Symposium was held in Western...
| Autores principales: | , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
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BioMed Central
2012
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| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3488492/ https://www.ncbi.nlm.nih.gov/pubmed/22883422 http://dx.doi.org/10.1186/1750-1172-7-50 |