Privacy protection and public goods: building a genetic database for health research in Newfoundland and Labrador

OBJECTIVE: To provide a legal and ethical analysis of some of the implementation challenges faced by the Population Therapeutics Research Group (PTRG) at Memorial University (Canada), in using genealogical information offered by individuals for its genetics research database. MATERIALS AND METHODS:...

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Detalles Bibliográficos
Autores principales: Kosseim, Patricia, Pullman, Daryl, Perrot-Daley, Astrid, Hodgkinson, Kathy, Street, Catherine, Rahman, Proton
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Group 2013
Materias:
Focus on Patient Privacy
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3555321/
https://www.ncbi.nlm.nih.gov/pubmed/22859644
http://dx.doi.org/10.1136/amiajnl-2012-001009

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3555321/
https://www.ncbi.nlm.nih.gov/pubmed/22859644
http://dx.doi.org/10.1136/amiajnl-2012-001009

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