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Privacy protection and public goods: building a genetic database for health research in Newfoundland and Labrador
OBJECTIVE: To provide a legal and ethical analysis of some of the implementation challenges faced by the Population Therapeutics Research Group (PTRG) at Memorial University (Canada), in using genealogical information offered by individuals for its genetics research database. MATERIALS AND METHODS:...
Autores principales: | Kosseim, Patricia, Pullman, Daryl, Perrot-Daley, Astrid, Hodgkinson, Kathy, Street, Catherine, Rahman, Proton |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BMJ Group
2013
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3555321/ https://www.ncbi.nlm.nih.gov/pubmed/22859644 http://dx.doi.org/10.1136/amiajnl-2012-001009 |
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