An i2b2-based, generalizable, open source, self-scaling chronic disease registry

OBJECTIVE: Registries are a well-established mechanism for obtaining high quality, disease-specific data, but are often highly project-specific in their design, implementation, and policies for data use. In contrast to the conventional model of centralized data contribution, warehousing, and control...

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Detalles Bibliográficos
Autores principales: Natter, Marc D, Quan, Justin, Ortiz, David M, Bousvaros, Athos, Ilowite, Norman T, Inman, Christi J, Marsolo, Keith, McMurry, Andrew J, Sandborg, Christy I, Schanberg, Laura E, Wallace, Carol A, Warren, Robert W, Weber, Griffin M, Mandl, Kenneth D
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Group 2013
Materias:
Focus on Data Sharing
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3555330/
https://www.ncbi.nlm.nih.gov/pubmed/22733975
http://dx.doi.org/10.1136/amiajnl-2012-001042

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3555330/
https://www.ncbi.nlm.nih.gov/pubmed/22733975
http://dx.doi.org/10.1136/amiajnl-2012-001042

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