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Modeling delay to diagnosis for Amyotrophic lateral sclerosis: under reporting and incidence estimates

BACKGROUND: This paper provides a strategy to obtain a reliable estimate of the incidence rate for Amyotrophic lateral sclerosis based on data from the National Registry of Rare Diseases (NRRD). In fact, unobserved cases may be due to the fact that “a long time” may intercour between the suspect of...

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Detalles Bibliográficos
Autores principales: Rocchetti, Irene, Taruscio, Domenica, Pierannunzio, Daniela
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2012
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3576353/
https://www.ncbi.nlm.nih.gov/pubmed/23259505
http://dx.doi.org/10.1186/1471-2377-12-160