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Modeling delay to diagnosis for Amyotrophic lateral sclerosis: under reporting and incidence estimates
BACKGROUND: This paper provides a strategy to obtain a reliable estimate of the incidence rate for Amyotrophic lateral sclerosis based on data from the National Registry of Rare Diseases (NRRD). In fact, unobserved cases may be due to the fact that “a long time” may intercour between the suspect of...
Autores principales: | , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2012
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3576353/ https://www.ncbi.nlm.nih.gov/pubmed/23259505 http://dx.doi.org/10.1186/1471-2377-12-160 |