Development of the Adult PedsQL™ Neurofibromatosis Type 1 Module: Initial Feasibility, Reliability and Validity

BACKGROUND: Neurofibromatosis type 1 (NF1) is a common autosomal dominant genetic disorder with significant impact on health-related quality of life (HRQOL). Research in understanding the pathogenetic mechanisms of neurofibroma development has led to the use of new clinical trials for the treatment...

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Detalles Bibliográficos
Autores principales: Nutakki, Kavitha, Hingtgen, Cynthia M, Monahan, Patrick, Varni, James W, Swigonski, Nancy L
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2013
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3598795/
https://www.ncbi.nlm.nih.gov/pubmed/23432799
http://dx.doi.org/10.1186/1477-7525-11-21

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3598795/
https://www.ncbi.nlm.nih.gov/pubmed/23432799
http://dx.doi.org/10.1186/1477-7525-11-21

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