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The impact of Hunter syndrome (mucopolysaccharidosis type II) on health-related quality of life

BACKGROUND: Hunter syndrome (mucopolysaccharidosis type II (MPS II)) is a rare metabolic disease that can severely compromise health, well-being and life expectancy. Little evidence has been published on the impact of MPS II on health-related quality of life (HRQL). The objective of this study was t...

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Detalles Bibliográficos
Autores principales: Raluy-Callado, Mireia, Chen, Wen-Hung, Whiteman, David A H, Fang, Juanzhi, Wiklund, Ingela
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2013
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3722040/
https://www.ncbi.nlm.nih.gov/pubmed/23837440
http://dx.doi.org/10.1186/1750-1172-8-101