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The impact of Hunter syndrome (mucopolysaccharidosis type II) on health-related quality of life
BACKGROUND: Hunter syndrome (mucopolysaccharidosis type II (MPS II)) is a rare metabolic disease that can severely compromise health, well-being and life expectancy. Little evidence has been published on the impact of MPS II on health-related quality of life (HRQL). The objective of this study was t...
Autores principales: | , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2013
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3722040/ https://www.ncbi.nlm.nih.gov/pubmed/23837440 http://dx.doi.org/10.1186/1750-1172-8-101 |