Health-related quality of life for children with rare diagnoses, their parents’ satisfaction with life and the association between the two

PURPOSE: To examine children’s health-related quality of life and parents’ satisfaction with life and explore the association between the two in families where a child has a rare disorder. METHODS: We used a cross-sectional study design. A questionnaire was sent to parents of 439 school children (6–...

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Detalles Bibliográficos
Autores principales: Johansen, Heidi, Dammann, Brede, Andresen, Inger-Lise, Fagerland, Morten Wang
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2013
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3844436/
https://www.ncbi.nlm.nih.gov/pubmed/24010895
http://dx.doi.org/10.1186/1477-7525-11-152

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3844436/
https://www.ncbi.nlm.nih.gov/pubmed/24010895
http://dx.doi.org/10.1186/1477-7525-11-152

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