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Health-related quality of life for children with rare diagnoses, their parents’ satisfaction with life and the association between the two
PURPOSE: To examine children’s health-related quality of life and parents’ satisfaction with life and explore the association between the two in families where a child has a rare disorder. METHODS: We used a cross-sectional study design. A questionnaire was sent to parents of 439 school children (6–...
| Autores principales: | , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
BioMed Central
2013
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3844436/ https://www.ncbi.nlm.nih.gov/pubmed/24010895 http://dx.doi.org/10.1186/1477-7525-11-152 |