Using the Internet to Seek Information About Genetic and Rare Diseases: A Case Study Comparing Data From 2006 and 2011

BACKGROUND: The Genetic and Rare Disease Information Center (GARD) is a major provider of Web-based information on genetic and rare diseases. Little is known about the type of Web-based information individuals seek about genetic and rare diseases or their reasons for seeking. OBJECTIVE: The objectiv...

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Detalles Bibliográficos
Autores principales: Morgan, Tamandra, Schmidt, Johanna, Haakonsen, Christy, Lewis, Janine, Della Rocca, Maria, Morrison, Stephanie, Biesecker, Barbara, Kaphingst, Kimberly A
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications Inc. 2014
Materias:
Original Paper
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3961701/
https://www.ncbi.nlm.nih.gov/pubmed/24565858
http://dx.doi.org/10.2196/resprot.2916

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3961701/
https://www.ncbi.nlm.nih.gov/pubmed/24565858
http://dx.doi.org/10.2196/resprot.2916

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