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Using the Internet to Seek Information About Genetic and Rare Diseases: A Case Study Comparing Data From 2006 and 2011
BACKGROUND: The Genetic and Rare Disease Information Center (GARD) is a major provider of Web-based information on genetic and rare diseases. Little is known about the type of Web-based information individuals seek about genetic and rare diseases or their reasons for seeking. OBJECTIVE: The objectiv...
Autores principales: | Morgan, Tamandra, Schmidt, Johanna, Haakonsen, Christy, Lewis, Janine, Della Rocca, Maria, Morrison, Stephanie, Biesecker, Barbara, Kaphingst, Kimberly A |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
JMIR Publications Inc.
2014
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3961701/ https://www.ncbi.nlm.nih.gov/pubmed/24565858 http://dx.doi.org/10.2196/resprot.2916 |
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