Harvard Personal Genome Project: lessons from participatory public research

BACKGROUND: Since its initiation in 2005, the Harvard Personal Genome Project has enrolled thousands of volunteers interested in publicly sharing their genome, health and trait data. Because these data are highly identifiable, we use an ‘open consent’ framework that purposefully excludes promises ab...

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Detalles Bibliográficos
Autores principales: Ball, Madeleine P, Bobe, Jason R, Chou, Michael F, Clegg, Tom, Estep, Preston W, Lunshof, Jeantine E, Vandewege, Ward, Zaranek, Alexander Wait, Church, George M
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2014
Materias:
Open Debate
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3978420/
https://www.ncbi.nlm.nih.gov/pubmed/24713084
http://dx.doi.org/10.1186/gm527

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3978420/
https://www.ncbi.nlm.nih.gov/pubmed/24713084
http://dx.doi.org/10.1186/gm527

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