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Participant-centric initiatives: Tools to facilitate engagement in research

Clinical genomic research faces increasing challenges in establishing participant privacy and consent processes that facilitate meaningful choice and communication capacity for longitudinal and secondary research uses. There are an evolving range of participant-centric initiatives that combine web-b...

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Detalles Bibliográficos
Autores principales: Anderson, Nicholas, Bragg, Caleb, Hartzler, Andrea, Edwards, Kelly
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Elsevier 2012
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3998724/
https://www.ncbi.nlm.nih.gov/pubmed/24772384
http://dx.doi.org/10.1016/j.atg.2012.07.001