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Participant-centric initiatives: Tools to facilitate engagement in research
Clinical genomic research faces increasing challenges in establishing participant privacy and consent processes that facilitate meaningful choice and communication capacity for longitudinal and secondary research uses. There are an evolving range of participant-centric initiatives that combine web-b...
Autores principales: | Anderson, Nicholas, Bragg, Caleb, Hartzler, Andrea, Edwards, Kelly |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Elsevier
2012
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3998724/ https://www.ncbi.nlm.nih.gov/pubmed/24772384 http://dx.doi.org/10.1016/j.atg.2012.07.001 |
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