A population-based registry as a source of health indicators for rare diseases: the ten-year experience of the Veneto Region’s rare diseases registry

BACKGROUND: Although rare diseases have become a major public health issue, there is a paucity of population-based data on rare diseases. The aim of this epidemiological study was to provide descriptive figures referring to a sizable group of unrelated rare diseases. METHODS: Data from the rare dise...

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Detalles Bibliográficos
Autores principales: Mazzucato, Monica, Visonà Dalla Pozza, Laura, Manea, Silvia, Minichiello, Cinzia, Facchin, Paola
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2014
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4000007/
https://www.ncbi.nlm.nih.gov/pubmed/24646171
http://dx.doi.org/10.1186/1750-1172-9-37

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4000007/
https://www.ncbi.nlm.nih.gov/pubmed/24646171
http://dx.doi.org/10.1186/1750-1172-9-37

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