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Consulting communities on feedback of genetic findings in international health research: sharing sickle cell disease and carrier information in coastal Kenya

BACKGROUND: International health research in malaria-endemic settings may include screening for sickle cell disease, given the relationship between this important genetic condition and resistance to malaria, generating questions about whether and how findings should be disclosed. The literature on d...

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Detalles Bibliográficos
Autores principales: Marsh, Vicki, Kombe, Francis, Fitzpatrick, Raymond, Williams, Thomas N, Parker, Michael, Molyneux, Sassy
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2013
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4016314/
https://www.ncbi.nlm.nih.gov/pubmed/24125465
http://dx.doi.org/10.1186/1472-6939-14-41