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Consulting communities on feedback of genetic findings in international health research: sharing sickle cell disease and carrier information in coastal Kenya
BACKGROUND: International health research in malaria-endemic settings may include screening for sickle cell disease, given the relationship between this important genetic condition and resistance to malaria, generating questions about whether and how findings should be disclosed. The literature on d...
Autores principales: | Marsh, Vicki, Kombe, Francis, Fitzpatrick, Raymond, Williams, Thomas N, Parker, Michael, Molyneux, Sassy |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2013
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4016314/ https://www.ncbi.nlm.nih.gov/pubmed/24125465 http://dx.doi.org/10.1186/1472-6939-14-41 |
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