A European Network of Email and Telephone Help Lines Providing Information and Support on Rare Diseases: Results From a 1-Month Activity Survey

BACKGROUND: Information on rare diseases are often complex to understand, or difficult to access and additional support is often necessary. Rare diseases helplines work together across Europe to respond to calls and emails from the public at large, including patients, health care professionals, fami...

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Detalles Bibliográficos
Autores principales: Houyez, Francois, Sanchez de Vega, Rosa, Brignol, Tuy Nga, Mazzucato, Monica, Polizzi, Agata
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications Inc. 2014
Materias:
Original Paper
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4026574/
https://www.ncbi.nlm.nih.gov/pubmed/24797216
http://dx.doi.org/10.2196/ijmr.2867

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4026574/
https://www.ncbi.nlm.nih.gov/pubmed/24797216
http://dx.doi.org/10.2196/ijmr.2867

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