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Perspectives on neurological patient registries: a literature review and focus group study

BACKGROUND: Patient registries represent a well-established methodology for prospective data collection with a wide array of applications for clinical research and health care administration. An examination and synthesis of registry stakeholder perspectives has not been previously reported in the li...

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Detalles Bibliográficos
Autores principales: Korngut, Lawrence, MacKean, Gail, Casselman, Lisa, Johnston, Megan, Day, Lundy, Lam, Darren, Lorenzetti, Diane, Warner, Janet, Jetté, Nathalie, Pringsheim, Tamara
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2013
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4225768/
https://www.ncbi.nlm.nih.gov/pubmed/24209392
http://dx.doi.org/10.1186/1471-2288-13-135