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Organizing national responses for rare blood disorders: the Italian experience with sickle cell disease in childhood
BACKGROUND: Sickle cell disease (SCD) is the most frequent hemoglobinopathy worldwide but remains a rare blood disorder in most western countries. Recommendations for standard of care have been produced in the United States, the United Kingdom and France, where this disease is relatively frequent be...
Autores principales: | , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2013
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4231397/ https://www.ncbi.nlm.nih.gov/pubmed/24139596 http://dx.doi.org/10.1186/1750-1172-8-169 |