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Patient reports of health outcome for adults living with sickle cell disease: development and testing of the ASCQ-Me item banks
BACKGROUND: Providers and patients have called for improved understanding of the health care requirements of adults with sickle cell disease (SCD) and have identified the need for a systematic, reliable and valid method to document the patient-reported outcomes (PRO) of adult SCD care. To address th...
Autores principales: | , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2014
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4243820/ https://www.ncbi.nlm.nih.gov/pubmed/25146160 http://dx.doi.org/10.1186/s12955-014-0125-0 |