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Patient reports of health outcome for adults living with sickle cell disease: development and testing of the ASCQ-Me item banks

BACKGROUND: Providers and patients have called for improved understanding of the health care requirements of adults with sickle cell disease (SCD) and have identified the need for a systematic, reliable and valid method to document the patient-reported outcomes (PRO) of adult SCD care. To address th...

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Detalles Bibliográficos
Autores principales: Keller, San D, Yang, Manshu, Treadwell, Marsha J, Werner, Ellen M, Hassell, Kathryn L
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2014
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4243820/
https://www.ncbi.nlm.nih.gov/pubmed/25146160
http://dx.doi.org/10.1186/s12955-014-0125-0