Cargando…
Patient reports of health outcome for adults living with sickle cell disease: development and testing of the ASCQ-Me item banks
BACKGROUND: Providers and patients have called for improved understanding of the health care requirements of adults with sickle cell disease (SCD) and have identified the need for a systematic, reliable and valid method to document the patient-reported outcomes (PRO) of adult SCD care. To address th...
Autores principales: | Keller, San D, Yang, Manshu, Treadwell, Marsha J, Werner, Ellen M, Hassell, Kathryn L |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2014
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4243820/ https://www.ncbi.nlm.nih.gov/pubmed/25146160 http://dx.doi.org/10.1186/s12955-014-0125-0 |
Ejemplares similares
-
Sensitivity of alternative measures of functioning and wellbeing for adults with sickle cell disease: comparison of PROMIS® to ASCQ-Me℠
por: Keller, San, et al.
Publicado: (2017) -
Quality of care in sickle cell disease: Cross-sectional study and development of a measure for adults reporting on ambulatory and emergency department care
por: Evensen, Christian T., et al.
Publicado: (2016) -
A pilot test of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) and the Jenerette Self-Care Assessment (J-SAT) Tools in adults with sickle cell disease
por: Bulgin, Dominique, et al.
Publicado: (2019) -
P1479: A BASELINE AUDIT OF THE USE A VALIDATED PSYCHOMETRIC TOOL (ASCQ-ME) TO ASSESS THE UNMET PSYCHOLOGICAL NEEDS OF A 2021 COHORT OF PATIENTS LIVING WITH SICKLE CELL
por: Kelleher, K., et al.
Publicado: (2022) -
A reporting checklist for HealthMeasures’ patient-reported outcomes: ASCQ-Me, Neuro-QoL, NIH Toolbox, and PROMIS
por: Hanmer, Janel, et al.
Publicado: (2020)