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Development of a Provisional Model to Improve Transitional Care for Female Adolescents with a Rare Genital Malformation as an Example for Orphan Diseases

Deficits of care exist during the transitional period, when young people with ongoing needs of support to achieve their physical, social, and psychological potential are entering adulthood. This study aims to develop a patient oriented, structured provisional model to improve transitional care for a...

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Detalles Bibliográficos
Autores principales: Simoes, Elisabeth, Kronenthaler, Andrea, Emrich, Christine, Rieger, Monika A., Rall, Kristin Katharina, Schäffeler, Norbert, Hiltner, Hanna, Ueding, Esther, Brucker, Sara Y.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Hindawi Publishing Corporation 2014
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4269155/
https://www.ncbi.nlm.nih.gov/pubmed/25544945
http://dx.doi.org/10.1155/2014/913842