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Development of a Provisional Model to Improve Transitional Care for Female Adolescents with a Rare Genital Malformation as an Example for Orphan Diseases
Deficits of care exist during the transitional period, when young people with ongoing needs of support to achieve their physical, social, and psychological potential are entering adulthood. This study aims to develop a patient oriented, structured provisional model to improve transitional care for a...
Autores principales: | Simoes, Elisabeth, Kronenthaler, Andrea, Emrich, Christine, Rieger, Monika A., Rall, Kristin Katharina, Schäffeler, Norbert, Hiltner, Hanna, Ueding, Esther, Brucker, Sara Y. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Hindawi Publishing Corporation
2014
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4269155/ https://www.ncbi.nlm.nih.gov/pubmed/25544945 http://dx.doi.org/10.1155/2014/913842 |
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