That eagle covering me: transitioning and connected autonomy for emerging adults with cystinosis

BACKGROUND: Rare diseases pose transitioning challenges owing to limited provider expertise and changing healthcare systems. The timeframe and developmental changes of emerging adulthood overlap with the transition of patients with cystinosis from pediatric to adult-oriented healthcare. METHODS: Thi...

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Detalles Bibliográficos
Autores principales: Doyle, Maya, Werner-Lin, Allison
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Berlin Heidelberg 2014
Materias:
Original Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4282721/
https://www.ncbi.nlm.nih.gov/pubmed/25159720
http://dx.doi.org/10.1007/s00467-014-2921-5

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4282721/
https://www.ncbi.nlm.nih.gov/pubmed/25159720
http://dx.doi.org/10.1007/s00467-014-2921-5

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