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That eagle covering me: transitioning and connected autonomy for emerging adults with cystinosis
BACKGROUND: Rare diseases pose transitioning challenges owing to limited provider expertise and changing healthcare systems. The timeframe and developmental changes of emerging adulthood overlap with the transition of patients with cystinosis from pediatric to adult-oriented healthcare. METHODS: Thi...
| Autores principales: | , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
Springer Berlin Heidelberg
2014
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| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4282721/ https://www.ncbi.nlm.nih.gov/pubmed/25159720 http://dx.doi.org/10.1007/s00467-014-2921-5 |