Early stages of building a rare disease registry, methods and 2010 data from the Belgian Neuromuscular Disease Registry (BNMDR)

The Belgian Neuromuscular Disease Registry, commissioned in 2008, aims to collect data to improve knowledge on neuromuscular diseases and enhance quality health services for neuromuscular disease patients. This paper presents a clear outline of the strategy to launch a global national registry. All...

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Detalles Bibliográficos
Autores principales: Roy, Anna J., Van den Bergh, Peter, Van Damme, Philip, Doggen, Kris, Van Casteren, Viviane
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Milan 2014
Materias:
Original Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4438257/
https://www.ncbi.nlm.nih.gov/pubmed/24957677
http://dx.doi.org/10.1007/s13760-014-0320-0

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4438257/
https://www.ncbi.nlm.nih.gov/pubmed/24957677
http://dx.doi.org/10.1007/s13760-014-0320-0

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