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Fair Shares and Sharing Fairly: A Survey of Public Views on Open Science, Informed Consent and Participatory Research in Biobanking

CONTEXT: Biobanks are important resources which enable large-scale genomic research with human samples and data, raising significant ethical concerns about how participants’ information is managed and shared. Three previous studies of the Canadian public’s opinion about these topics have been conduc...

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Detalles Bibliográficos
Autores principales: Joly, Yann, Dalpé, Gratien, So, Derek, Birko, Stanislav
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Public Library of Science 2015
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4495996/
https://www.ncbi.nlm.nih.gov/pubmed/26154134
http://dx.doi.org/10.1371/journal.pone.0129893