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Research participants’ perceptions and views on consent for biobank research: a review of empirical data and ethical analysis
BACKGROUND: Appropriate information and consent has been one of the most intensely discussed topics within the context of biobank research. In parallel to the normative debate, many socio-empirical studies have been conducted to gather experiences, preferences and views of patients, healthy research...
Autores principales: | , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2015
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4563851/ https://www.ncbi.nlm.nih.gov/pubmed/26354520 http://dx.doi.org/10.1186/s12910-015-0053-5 |