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Experience of Gastrostomy Using a Quality Care Framework: The Example of Rett Syndrome

Rett syndrome is one of many severe neurodevelopmental disorders with feeding difficulties. In this study, associations between feeding difficulties, age, MECP2 genotype, and utilization of gastrostomy were investigated. Weight change and family satisfaction following gastrostomy were explored. Data...

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Detalles Bibliográficos
Autores principales: Downs, Jenny, Wong, Kingsley, Ravikumara, Madhur, Ellaway, Carolyn, Elliott, Elizabeth J., Christodoulou, John, Jacoby, Peter, Leonard, Helen
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Wolters Kluwer Health 2014
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4603139/
https://www.ncbi.nlm.nih.gov/pubmed/25526491
http://dx.doi.org/10.1097/MD.0000000000000328