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Light Chain Amyloidosis: Patient Experience Survey from the Amyloidosis Research Consortium

INTRODUCTION: Information detailing the experience of patients with light chain (AL) amyloidosis is lacking. The primary aim of this study was to gather data on the patient experience to understand the challenges in diagnosis and to gain insight into barriers to accessing appropriate care. METHODS:...

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Detalles Bibliográficos
Autores principales: Lousada, Isabelle, Comenzo, Raymond L., Landau, Heather, Guthrie, Spencer, Merlini, Giampaolo
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Healthcare 2015
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4635176/
https://www.ncbi.nlm.nih.gov/pubmed/26498944
http://dx.doi.org/10.1007/s12325-015-0250-0