The involvement of patient organisations in rare disease research: a mixed methods study in Australia

BACKGROUND: We report here selected findings from a mixed-methods study investigating the role of Australian rare disease patient organisations (RDPOs) in research. Despite there being many examples of RDPOs that have initiated and supported significant scientific advances, there is little informati...

Descripción completa

Detalles Bibliográficos
Autores principales: Pinto, Deirdre, Martin, Dominique, Chenhall, Richard
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2016
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4709899/
https://www.ncbi.nlm.nih.gov/pubmed/26754025
http://dx.doi.org/10.1186/s13023-016-0382-6

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4709899/
https://www.ncbi.nlm.nih.gov/pubmed/26754025
http://dx.doi.org/10.1186/s13023-016-0382-6

Ejemplares similares