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The medical experience of a patient with a rare disease and her family
This letter considers the main challenges that people with rare diseases and their families face: delay in diagnosis, lack of appropriate support and information, and impaired access to treatment. The differences in medical experience between a patient with a rare disease and one with a common one a...
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
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BioMed Central
2016
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| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4770634/ https://www.ncbi.nlm.nih.gov/pubmed/26923565 http://dx.doi.org/10.1186/s13023-016-0401-7 |