Assessing the feasibility of a web-based registry for multiple orphan lung diseases: the Australasian Registry Network for Orphan Lung Disease (ARNOLD) experience

BACKGROUND: We investigated the feasibility of using an online registry to provide prevalence data for multiple orphan lung diseases in Australia and New Zealand. METHODS: A web-based registry, The Australasian Registry Network of Orphan Lung Diseases (ARNOLD) was developed based on the existing Bri...

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Detalles Bibliográficos
Autores principales: Casamento, K., Laverty, A., Wilsher, M., Twiss, J., Gabbay, E., Glaspole, I., Jaffe, A.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2016
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4835874/
https://www.ncbi.nlm.nih.gov/pubmed/27090393
http://dx.doi.org/10.1186/s13023-016-0389-z

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4835874/
https://www.ncbi.nlm.nih.gov/pubmed/27090393
http://dx.doi.org/10.1186/s13023-016-0389-z

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