Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Research Feedback: A Qualitative Study

BACKGROUND: Electronic health records are widely acknowledged to provide an important opportunity to anonymize patient-level health care data and collate across populations to support research. Nonetheless, in the wake of public and policy concerns about security and inappropriate use of data, conve...

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Detalles Bibliográficos
Autores principales: Spencer, Karen, Sanders, Caroline, Whitley, Edgar A, Lund, David, Kaye, Jane, Dixon, William Gregory
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications Inc. 2016
Materias:
Original Paper
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4851723/
https://www.ncbi.nlm.nih.gov/pubmed/27083521
http://dx.doi.org/10.2196/jmir.5011

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4851723/
https://www.ncbi.nlm.nih.gov/pubmed/27083521
http://dx.doi.org/10.2196/jmir.5011

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