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Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Research Feedback: A Qualitative Study

BACKGROUND: Electronic health records are widely acknowledged to provide an important opportunity to anonymize patient-level health care data and collate across populations to support research. Nonetheless, in the wake of public and policy concerns about security and inappropriate use of data, conve...

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Detalles Bibliográficos
Autores principales:	Spencer, Karen, Sanders, Caroline, Whitley, Edgar A, Lund, David, Kaye, Jane, Dixon, William Gregory
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	JMIR Publications Inc. 2016
Materias:	Original Paper
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4851723/ https://www.ncbi.nlm.nih.gov/pubmed/27083521 http://dx.doi.org/10.2196/jmir.5011

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