A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States

PURPOSE: In 2011, an Advanced Notice of Proposed Rulemaking proposed that de-identified human data and specimens be included in biobanks only if patients provide consent. The National Institutes of Health Genomic Data Sharing policy went into effect in 2015, requiring broad consent from almost all r...

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Detalles Bibliográficos
Autores principales: Garrison, Nanibaa' A., Sathe, Nila A., Antommaria, Armand H. Matheny, Holm, Ingrid A., Sanderson, Saskia C., Smith, Maureen E., McPheeters, Melissa L., Clayton, Ellen W.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Nature Publishing Group 2016
Materias:
Systematic Review
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4873460/
https://www.ncbi.nlm.nih.gov/pubmed/26583683
http://dx.doi.org/10.1038/gim.2015.138

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4873460/
https://www.ncbi.nlm.nih.gov/pubmed/26583683
http://dx.doi.org/10.1038/gim.2015.138

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