Rare disease research: Breaking the privacy barrier

Due to the few patients affected, rare disease research has to count on international registries to exist in order to produce significant research outputs. Data sharing of registries is therefore a unique resource to allow rare disease research to flourish and any lost data will jeopardize the quali...

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Detalles Bibliográficos
Autores principales: Mascalzoni, Deborah, Paradiso, Angelo, Hansson, Matts
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Elsevier 2014
Materias:
Special Issue - From Biobanks to the Clinic
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4882025/
https://www.ncbi.nlm.nih.gov/pubmed/27275410
http://dx.doi.org/10.1016/j.atg.2014.04.003

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4882025/
https://www.ncbi.nlm.nih.gov/pubmed/27275410
http://dx.doi.org/10.1016/j.atg.2014.04.003

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