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Catastrophic expenditure and impoverishment of patients affected by 7 rare diseases in China

BACKGROUND: China is actively promoting regulation of rare diseases, rare disease and orphan drugs have been formally incorporated into the national planning. However, few studies have been done to evaluate the affordability of rare disease patients in China. This study aims to provide policy recomm...

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Detalles Bibliográficos
Autores principales: Xin, Xiao-Xiong, Guan, Xiao-Dong, Shi, Lu-Wen
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2016
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4895890/
https://www.ncbi.nlm.nih.gov/pubmed/27266878
http://dx.doi.org/10.1186/s13023-016-0454-7