Characteristics of patients contacting a center for undiagnosed and rare diseases

BACKGROUND: Little is known about the characteristics of patients seeking help from dedicated centers for undiagnosed and rare diseases. However, information about their demographics, symptoms, prior diagnoses and medical specialty is crucial to optimize these centers’ processes and infrastructure....

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Detalles Bibliográficos
Autores principales: Mueller, Tobias, Jerrentrup, Andreas, Bauer, Max Jakob, Fritsch, Hans Walter, Schaefer, Juergen Rolf
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2016
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4915144/
https://www.ncbi.nlm.nih.gov/pubmed/27328799
http://dx.doi.org/10.1186/s13023-016-0467-2

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4915144/
https://www.ncbi.nlm.nih.gov/pubmed/27328799
http://dx.doi.org/10.1186/s13023-016-0467-2

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